Get Involved in Research

Find out more about how you can take part in studies to improve understanding of Dravet Syndrome and, if you’re a researcher, discover what support we can provide.

Take part in research supported by Dravet Syndrome UK

By taking part in our research, you’ll help to improve understanding of Dravet Syndrome and find more treatments to benefit everyone affected by the condition.

Taking part can be anything from talking about your experience in a focus group, answering survey questions about living with Dravet Syndrome, or trialling new treatments.

The SCN1A Horizons Natural History Study; 

The SCN1A Horizons Natural History Study is recruiting participants across the UK and is open anyone with a confirmed SCN1A related epilepsy. The study currently includes around 150 patients and is looking to increase representation within the 0-2 years and 17+ years age bracket.

If you would like to participate, please contact the study team on [email protected] (including the name of your neurologist and hospital).