Become a Friend of Dravet Syndrome UK
Become a Friend of Dravet Syndrome UK from just £10 per month (only 32p per day) so that when families living with Dravet Syndrome wake to another difficult day, help is already at hand.
Our ‘Love is…’ campaign is based around a powerful film telling the story of five-year old Etta – a brave young girl whose life has been shaped by Dravet Syndrome. The film offers an intimate view into the daily challenges faced by Etta and her parents Lucie and Jo and the vital support Dravet Syndrome UK provides.
Introducing our 'Love is…' Campaign
Help us bring hope to families, like Etta’s, who are living with Dravet Syndrome.
How your donation helps
As part of our ‘Love is…’ campaign we are asking for donations to support the vital work we do at Dravet Syndrome UK. We need to raise £500,000 per year in order to keep Dravet Syndrome UK running.
Here are some examples of how we utilise funds to help improve the lives of families.
“Love is watching Etta laugh and play and just… be our ray of sunshine. But it’s also being there for the oxygen masks, the seizures, and the terrifying ambulance rides. It’s living with that constant shadow, even in our happiest moments."
Become a Friend of Dravet Syndrome UK
Join us in making a lasting impact – become a Friend of Dravet Syndrome UK today for just £10 a month, or as much as you can give. Your regular gift can turn uncertainty into dependable support that enables us to reach families when they need us most.
Love is giving today to change tomorrow.
View Etta’s Story
Etta’s parents Jo and Lucie describe the path from Etta’s first seizure to her diagnosis and how support from Dravet Syndrome UK helps them manage daily life.