Family Support Coordinator
As Family Support Coordinator at Dravet Syndrome UK, my role is to be a point of contact for families, offering practical support, guidance and a listening ear throughout their journey.
I work alongside families to understand what matters to them and what support they may need. This can include helping to navigate services, understand what options are available, access practical support and advocate alongside families.
As Family Support Coordinator I am here to offer support for the whole family, including siblings, recognising the impact Dravet syndrome can have on family life as a whole. I work collaboratively with families, professionals and other organisations to help connect families with appropriate information, services and support.