Ben
Ben received his Dravet Syndrome diagnosis as an adult, despite having had his first seizures, 3 febrile convulsions, at 5 months old. Mum, Liz, who tells their story.
Dedicated to improving the lives of those affected by Dravet Syndrome through support, education and medical research.
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If you are living with Dravet Syndrome, you're not alone. Find out more about the support we provide to families affected by Dravet Syndrome, including our annual Center Parcs weekend, our assistance grants and how to join us.
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