About Us



Dravet Syndrome UK is dedicated to funding medical research into Dravet syndrome, and other related genetic sodium channel epilepsies.

At this moment in time there is no cure for Dravet syndrome and there is a need for more research into the causes and complexities of the condition.

Dravet Syndrome UK operate a specific research fund, into which people can donate or direct their fundraising, as well as at least 10% of all income going directly into the research fund.

Dravet Syndrome UK aim to fund at least one research project a year, where possible. In addition to this commitment, in 2016 Dravet UK successfully partnered with children’s research charity Sparks. Since 1991 Sparks has been playing a vital role in improving the health and quality of life for children in the UK and worldwide by funding high quality cutting edge medical research.

Sparks shall work closely with DSUK on a number of levels however primarily to ensure we maximise our strategy and approach for research into Dravet syndrome. Between 2015 and 2020 Sparks aims to build capacity in children’s health research and support the researchers of the future by offering project and innovation grants, PhD studentships, clinical research training fellowships and programme grants.

With your amazing fundraising support we are continuing to work hard alongside our partners to identify and fund new research into treatments and methods of diagnosis to improve the lives of all living with Dravet syndrome.

You can find out more about Dravet Syndrome UK and Sparks in partnership by visiting www.sparks.org.uk/research-partners/current-partners/dravet-syndrome-uk/