Every Day in May for Dravet 2026

Every Day in May For Dravet, now it's 6th year, is open for registration!

The Story Behind The Campaign

Supporter Tamara ‘Tats’ Ward, was inspired to set up the Every Day in May for Dravet challenge in 2021 when she was unable to visit her seven-year-old nephew Dominic, who lives with Dravet Syndrome during COVID. Since 2021, the event has grown tremendously, from 40 participants that first year, to almost 500 adults and children taking part in 2025 from all over the UK, raising a phenomenal £120,000 and helping us to support more families, educate more professionals and fund more research.

Join The Challenge

The challenge is to walk, run, swim or cycle 5km or 2km each and every day in the month of May. You can do it however, whenever and wherever suits you and mix it up as much as you like! You can also join as a relay team, sharing the load throughout the month to achieve your daily team goals. Whether you go it alone or join with friends and family, we can help keep you motivated throughout with WhatsApp groups and Spotify playlists as well as provide lots of support to help reach your fundraising goal.

In 2026, we’re hoping to smash our 2025 success with even more participants raising even more awareness and funds!

If you have any questions in the meantime, please email [email protected]

Join the Every Day in May for Dravet challenge

Sign up to Dravet Syndrome UK's 'Every Day in May for Dravet' campaign and help raise vital funds and awareness for all those living with this life-limiting condition.

A look back at EDIM 2025…

Every Day In May For Dravet was amazing to be a part of. It got me out the house more, got people asking about Dravet Syndrome as they were reading my T-shirts and it helped with losing some weight which was an added bonus.

Thank you so much to everyone who donates, cheers from the side lines, and to everyone who takes part. If you’d like to support this incredible team, you can make a donation here.

2025 Every Day in May Round-Up

Spread the word about Every Day in May for Dravet

Get your toolkit for promoting Every Day in May for Dravet across social media, including logos, frames and some text ideas to help fire up your fundraising campaign.

Get your materials

Get your EDIM merchandise!

Grab your branded Every Day in May for Dravet running vest, ready to wear throughout the challenge!

Visit our shop

Make a donation

If you’d like to support our campaign but aren’t able to join in with the challenge, please consider making a donation support our charity.

Donate here