Dravet Syndrome Awareness Month

We're delighted to announce that Dravet Syndrome Awareness Month is back for 2024! Join us in sharing facts, stories and activities to raise awareness of Dravet Syndrome across the UK this June.

This year, our theme is ‘Little Moments Matter’ and is inspired by conversations we have with families. We know there is so much going on for families living with Dravet Syndrome and the worry, concern and challenges faced in daily life can be difficult to comprehend. With that in mind, we've asked our community to focus in on the 'Little Moments' - those things that really matter when caring for their child or adult living with Dravet Syndrome.

Throughout the month we will be sharing the stories of families affected by Dravet Syndrome, some exciting research news and more!

Key Dates

Dravet Syndrome Awareness Month will run for the whole of June, with two extra special dates to add to your diaries;

Dravet Syndrome Remembrance Day: Saturday 15th June

Dravet Syndrome Remembrance Day will take place on 15th June and will be a time for our community to reflect and remember those whom we have so sadly lost. We mark this day by sharing our permanent, virtual, Wall of Remembrance, dedicated to our loved ones who are no longer with us. Families who have experienced a bereavement due to Dravet Syndrome are invited to submit their loved one’s name to be included on our Wall of Remembrance via info@dravet.org.uk, if they wish to do so.

Dravet Syndrome Awareness Day: Sunday 23rd June

Look out for our special Awareness Day film which we'll share on Sunday 23rd June. Please like and share with your networks to increase engagement and awareness. This year our film will be focussed on our theme of 'Little Moments Matter'.

Get Involved

There's a number of ways in which you can get involved and help to raise awareness of Dravet Syndrome:

Press Coverage

Thank you so much to families living with Dravet Syndrome who have shared their story in local and regional press to help raise awareness this month.