Characteristics of Dravet Syndrome
Learn more about the characteristics of Dravet Syndrome, including seizures, developmental delay, intellectual disability and comorbidities.
The Healthcare Professional area of the Dravet Syndrome UK website is supported by unrestricted educational grants from Encoded Therapeutics, Jazz Pharmaceuticals, Stoke Therapeutics, Takeda and UCB. These organisations have had no involvement in the development of the website, or any of its content.
Independent, authoritative and expert-led information about Dravet Syndrome for healthcare professionals.
This open-access resource is intended to provide information for healthcare professionals looking to find out more about Dravet Syndrome. Whether you suspect a patient in your care may have Dravet Syndrome or want to find out more about the underlying causes of the condition, or you’re looking for information on supporting caregivers and their families, there’s something here for you.
Diagnosis and treatment
Early diagnosis and appropriate treatment can change lives for the better – find out more here.
Resources and publications
Links to NICE guidelines and other key publications for diagnosis, treatment and management of Dravet Syndrome.
Read key takeaways from the latest Dravet Syndrome UK conference
On Friday 14th November 2025 over 170 professionals joined us either in person or online at our biennial conference. The day included a packed agenda of presentations from the leading voices on Dravet Syndrome covering the latest updates, news and research.
Our Chief Scientific Officer, Ceri Hughes has put together a summary of key takeaways from the day. The next conference will take place in 2027.
Find out about the SC1NA Horizons Study
SCN1A Horizons aims to transform understanding of SCN1A epilepsies, including Dravet Syndrome, with the goal of improving and standardising care across the UK. For more information including participating centres, please contact the study team on [email protected].
Medical Advisory Board
All our activities are underpinned by guidance and support from a world renowned Medical Advisory Board.
Insight articles and publications
The latest thought leadership articles on Dravet Syndrome that healthcare professionals need to be aware of.
The SC1NA prediction model
Is it GFS+ or Dravet Syndrome? This internationally validated tool can aid earlier diagnosis.
Sign up to our professionals e-newsletter
Keep up-to-date with the latest news, research and information on supporting families.
Contact Us
Do you have a question about Dravet Syndrome? If example, if you are unsure about
a diagnosis, or would like to find out more about a clinical trial, please contact us and
we will forward your enquiry to our expert advisors. If you would like to order one of
our free leaflets for families, such as our Family Guide or Transition Guide, we’d be
happy to provide these.