About Dravet Syndrome
Often described as a complex form of epilepsy, Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK.
As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.
In this section, we provide detailed information about all aspects of Dravet Syndrome. Click on the images below to find out more.
What is Dravet Syndrome?
An introduction to Dravet Syndrome, including causes, symptoms and how to get diagnosed.
Could it be Dravet Syndrome?
Download our diagnosis guide summarising typical signs & symptoms, and what to do if you suspect Dravet.
Genetics of Dravet Syndrome
Find out about the genetic mutations that cause Dravet Syndrome, genetic testing and what advances in understanding mean for future treatments.
Living with Dravet Syndrome
Adapting to live with Dravet Syndrome can be challenging. Here you can watch two videos, featuring families from our Dravet community, that give an insight into every day life with Dravet Syndrome.
A guide to understanding the many different types of seizures that children & adults with Dravet Syndrome experience.
Find out about the spectrum of associated health problems (comorbidities) that Dravet children and adults may develop.
Treatments and Outcomes
Find out about the different treatments available for Dravet Syndrome.
Transition into Adulthood
Essential guidance and advice for navigating the changes to medical & social care, education, finance and legal rights that occur at 16-plus.