A review of Dravet Syndrome Awareness Month 2026: Love is
A look back on Dravet Syndrome Awareness Month, June 2026.
Our News
Dravet Syndrome UK launches new Lived Experience Board
Dravet Syndrome UK has launched the Lived Experience Board to centre the expertise of families in decision-making.
Little Moments Matter Award winners revealed
The winners of Dravet Syndrome UK's first-ever Little Moments Matter Awards revealed at the Dravet Syndrome UK conference in London
‘Love is’ campaign launches featuring moving film about Etta, a young girl living with Dravet Syndrome
Today, Dravet Syndrome UK has launched a new ‘Love is’ campaign, which includes a powerful film telling the story of five-year old Etta - a brave young girl whose life has been shaped by Dravet Syndrome. The film offers an intimate view into the daily challenges faced by Etta and her parents Lucie and Jo and the vital support Dravet Syndrome UK provides.
Dravet Syndrome Awareness Month 2025: shining a light on little moments that matter
Today marks the start of Dravet Syndrome Awareness Month 2025, an annual campaign dedicated to raising the profile of Dravet Syndrome.
Dravet Syndrome UK signs open letter to the Government calling for urgent investment into neurological research
Dravet Syndrome UK is proud to be joined with the Neurological Alliance to raise awareness and call on the UK Government to #InvestInNeuroResearch.
Watch our new video for Dravet Syndrome Awareness Day 2023
Please share our film and help us build more awareness of the impact of Dravet Syndrome.
Cricketing community comes together to support Dravet Syndrome UK
Surrey and Middlesex Cricket Clubs support Matt Dunn and family in a fitting tribute to his daughter, Florence.