Our News
New study reveals severe lack of support for Dravet Syndrome carers
A UK wide study exploring the impact on caregivers of those living with Dravet Syndrome has revealed that 90% were unable to continue working due to the sense of ‘constant struggle’.
Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome
We're delighted to announce that we have been selected by the Chan Zuckerberg Initiative (CZI) to receive $800,000 (approximately £600,000) over five years to accelerate our research programme.
Dravet Syndrome UK welcomes Stephanie Smith to Board of Trustees
We’re delighted to announce the appointment of Stephanie Smith to the Board of Trustees for Dravet Syndrome UK (DSUK),
Little Moments Matter film launched for Dravet Syndrome Awareness Day
A special film called ‘Little Moments Matter’ to mark Dravet Syndrome Awareness day 2024
Dravet Syndrome UK and Epilepsy Research Institute partner to invest in two future leaders in Dravet Syndrome and epilepsy research
We are incredibly proud to announce two unique research projects in collaboration with the Epilepsy Research Institute.
Study finds half of people living with Dravet Syndrome experience feeding problems
The study highlights that feeding difficulties are very common in Dravet Syndrome, affecting 52% of those with the condition and up to one in five may need a gastrostomy (or feeding tube) at some point.
Dravet Syndrome UK appoints first Head of Fundraising
Tania Lewis has been appointed as Dravet Syndrome UK’s first Head of Fundraising.
Dravet Syndrome UK bolsters team with new Head of Marketing and Communications appointment
Katherine Raven has been appointed as Dravet Syndrome UK’s Head of Marketing and Communications following the promotion of Claire Eldred to Director of the charity last year.