We are grateful for the support of our fantastic partner organisations.
Our Charity Sponsor - XTX Markets
Many thanks to our main sponsor, XTX Markets for their continued support. Without their funding, we would not be able to provide the range of services that make such a difference to families living with Dravet Syndrome (including the grants and assistance we provide for families).
Leading financial technology for fair and efficient markets, XTX Markets is a leading quantitative-driven electronic market-maker partnering with counterparties, exchanges and e-trading venues globally to provide liquidity in the Equity, FX, Fixed Income and Commodity markets. XTX Markets provides consistent liquidity, helping market participants throughout the world obtain competitive prices in the various assets classes covered, regardless of changing market conditions.
XTX Markets is a diverse organisation which attracts outstanding talent from across all industry backgrounds. The company is focused on teamwork and its people collaborate on all aspects of the business, working openly and with respect for each other, their clients and the market. XTX Markets is Risk.net's Streaming Liquity Provider of the Year (2018).
Find out more about XTX Markets here.
Genetic Alliance UK
DSUK is a member of Genetic Alliance UK, the national charity working to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions. Over 200 patient organisations are part of this nationwide alliance.
Genetic Alliance UK is also home to Rare Disease UK – the national campaign for people with rare diseases and all who support them – and Genetic Disorders UK, the group that also organises the annual Jeans for Genes Day fundraising event.
This mission of Genetic Alliance UK is to work with organisations and individuals to ensure that the needs and preferences of all people affected by genetic, rare and undiagnosed conditions are recognised, understood and met.
Find out more here.
Great Ormond Street Hospital Children's Charity (GOSH) and Sparks
Sparks joined Great Ormond Street Hospital Children’s Charity (GOSH Charity) in January 2017, in a partnership aimed at increasing funding for life-changing child health research.
DSUK collaborates with GOSH and Sparks to on a number of research projects, including an ongoing study investigating the benefits of gene therapy Dravet Syndrome.
Find out more about research projects supported by GOSH and Sparks here.
Dravet Syndrome European Federation (DSEF)
DSUK is a member of the European organisation representing patient and family groups from across Europe. We also sit on the board of Trustees and are committed to collaborating with our sister organisations to improve the lives of those living with Dravet Syndrome, and their families. Other national Dravet Syndrome groups belonging to the DSEF include:
- Alliance Syndrome de Dravet (France)
- Dravet Syndrome e.V. (Germany)
- Dravet Italia Onlus and Gruppo Famiglie Dravet Onlus (both from Italy)
- Stichting Dravetsyndroom Nederland/Vlaanderen (Netherlands)
- Asociatia pentru Dravet si alte Epilepsii Rare (Romania)
- Dravet Syndrome Foundation – Delegation en Espana (Spain)
- Swiss Dravet Syndrome Association (Switzerland)
Find out more here.