We are grateful for the support of our fantastic partner organisations.
Our Charity Sponsor - XTX Markets
Leading financial technology for fair and efficient markets, XTX Markets is a leading quantitative-driven electronic market-maker partnering with counterparties, exchanges and e-trading venues globally to provide liquidity in the Equity, FX, Fixed Income and Commodity markets. XTX Markets provides consistent liquidity, helping market participants throughout the world obtain competitive prices in the various assets classes covered, regardless of changing market conditions.
XTX Markets is a diverse organisation which attracts outstanding talent from across all industry backgrounds. The company is focused on teamwork and its people collaborate on all aspects of the business, working openly and with respect for each other, their clients and the market. XTX Markets is Risk.net's Streaming Liquity Provider of the Year (2018).
Find out more about XTX Markets here.
Great Ormond Street Hospital Children's Charity (GOSH) and Sparks
Sparks joined Great Ormond Street Hospital Children’s Charity (GOSH Charity) in January 2017, in a partnership aimed at increasing funding for life-changing child health research. DSUK collaborates with GOSH and Sparks to on a number of research projects, including an ongoing study investigating the benefits of gene therapy Dravet Syndrome. Find out more about research projects supported by GOSH and Sparks here.
Genetic Alliance UK
DSUK is a member of Genetic Alliance UK, the national charity working to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions. Over 200 patient organisations are part of this nationwide alliance. Genetic Alliance UK is also home to Rare Disease UK – the national campaign for people with rare diseases and all who support them. Find out more here.
The Neurological Alliance
DSUK is a member of the Neurological Alliance, a coalition of more than 80 organisations working together to transform outcomes for the millions of people in England with a neurological condition. Their mission is to raise awareness and understanding of neurological conditions to ensure that every person diagnosed with a neurological condition has access to high quality, joined up services and information from their first symptoms, throughout their life. Find out more here.
DSUK is a member of the Embracing Complexity coalition, formed of leading UK neurodevelopmental condition and mental health charities. Embracing Complexity brings together organisations working to improve the lives of people with neurodevelopmental conditions. Together, the coalition aims to tackle stigma, improve outcomes, boost awareness and create a future where people with neurodevelopmental conditions and their families enjoy the same opportunities and experiences as the rest of society. Find out more here.
touchNEUROLOGY.com is an independent information resource supporting physicians, clinicians and leading industry professionals in continuously developing their knowledge, effectiveness and productivity, via free-to-access content in multimedia formats. We produce concise and balanced peer-reviewed, articles on a variety of salient topics as well as carefully selected video and podcasts; all free-to-access. These are designed for busy physicians and Health Care Professionals seeking the latest developments in their field. Find out more here.
Dravet Syndrome European Federation (DSEF)
DSUK is a member of the European organisation representing patient and family groups from across Europe. We are committed to collaborating with our sister organisations to improve the lives of those living with Dravet Syndrome, and their families. Other national Dravet Syndrome groups belonging to the DSEF include:
- Alliance Syndrome de Dravet (France)
- Dravet Syndrome e.V. (Germany)
- Dravet Italia Onlus and Gruppo Famiglie Dravet Onlus (both from Italy)
- Stichting Dravetsyndroom Nederland/Vlaanderen (Netherlands)
- Asociatia pentru Dravet si alte Epilepsii Rare (Romania)
- Dravet Syndrome Foundation – Delegation en Espana (Spain)
- Swiss Dravet Syndrome Association (Switzerland)
Find out more here.