George
In loving memory of George
Our stories
Receiving a diagnosis of Dravet Syndrome can be a frightening experience. Its important to remember you are not alone - other families are going through similar experiences. We have gathered together a number of written stories and videos from our Dravet Syndrome UK community. Find these through clicking on the filters, try searching for specific topics e.g. "guidance and advice", or simply browse the stories by clicking on the name. Always remember that, even though their symptoms and experiences may be similar, every child or adult living with Dravet Syndrome is different and can present differently.
Hannah C
In loving memory of Hannah
Darcie and Evie
In loving memory of Darcie Chapman
Damian
In loving memory of Damian.
Joseph
In loving memory of Joseph.
Poppy
In loving memory of Poppy.
Max Miller Prior
In loving memory of Max.
Ollie
In loving memory of Ollie.
Jake
In loving memory of Jake.