Exploring gene therapy with Oxford University
Lead researcher: Professor Matthew Wood
From lab research to focus groups with caregivers, our current research is furthering knowledge and deepening understanding of Dravet Syndrome and its impact on families.
Projects we’re funding;
Finding out why some people respond to treatment and others don’t
Lead researcher: Dr Ulrike Hedrich
Highlighting emotional challenges faced by parents/carers
Lead researcher: Professor Liam Dorris
The effect of music therapy on behaviours that challenge
Lead researcher: Leanne O’Keeffe
Transforming understanding of Dravet Syndrome – SCN1A Horizons Natural History Study
Lead researcher: Professor Andreas Brunklaus
Advancing precision medicine: genome engineering for on-demand gene therapy in Dravet Syndrome
Lead researcher: Dr Jenna Carpenter
Understanding autonomic dysfunction in Dravet Syndrome
Lead researcher: Dr Lisa Clayton