Each year we need to raise over £500,000 and every small amount makes a big difference.
We’ve recently developed a campaign to show people what life is like with Dravet Syndrome. Find out more about the star of our film Etta, her family, the stars of our latest fundraising campaign.
However you choose to fundraise, your amazing support enables Dravet Syndrome UK to keep providing our much-needed support services for families, raising awareness and understanding among healthcare professionals and funding medical research.
It has been so lovely to be able to raise funds for such a worthy cause. The team have been fantastic in providing materials to make our event more visual and help spread awareness. We're already planning the next one!
Fundraise for us
We’re with you every step of the way as you embark on your fundraising journey. Whether you’re challenging yourself as an individual, taking part in one of our events or joining with a group of friends or a local interest group, we’ve got you covered.
Read on to find some ideas that put the ‘fun’ into fundraising, as well as helpful tips to get you up and running practically.
Read on to find some ideas that put the ‘fun’ into fundraising, as well as helpful tips to get you up and running practically.
Tom's fundraising story
Tom, Dad to Beth who is living with Dravet Syndrome, takes on the London Marathon in 2026, raising funds and awareness for Dravet Syndrome UK