DSUK Conference – Parent / Carer Day

On-demand version of our biennial professional conference. The only scientific meeting in the UK that is dedicated to furthering knowledge about Dravet Syndrome.

Watch our Parent/Carer Conference on-demand until 1st December

The Dravet Syndrome UK Conference for Parent/Carers took place from 9am to 5pm on Saturday 15th November, in-person at the Hotel Pullman, London St Pancras, and virtually, online. The conference covered the latest information about Dravet Syndrome and also provided expert guidance on the practical aspects of living with Dravet Syndrome. If you were not able to join the Parent/Carer Conference live, there is still an opportunity to watch the main part of the Conference, including latest treatment and research updates.

We are making a recording available to watch from Tuesday 18th November to Monday 1st December. 

If you have already booked a virtual ticket, you should receive joining instructions from us on how to watch the conference back online. If you haven’t already got a virtual ticket, please complete the information below and we will send you details on how to access the conference. Any questions, you can contact us on [email protected].

With thanks to Liva Nova and XTX Markets for providing sponsorship funding to DSUK in support of the Biennial Parent/Carer Day Conference. These organisations have had not involvement in the development of the conference agenda, or any of its content.

Download the Parent/Carer Conference Agenda

"You learn so much from all the Professionals who are there at the Conference. You get to meet other families who are in the same circumstances as you and it makes such a difference. You go away from the Conference just feeling more empowered – more empowered because of information that you've been given and more empowered because you know you're not alone."
Scott, Dad to Thomas

Register to watch the Parent/Carer Conference on demand