Our News

Today, we're excited to be launching Dravet Syndrome UK’s first 5-year Research Strategy 2027–2032, setting out our vision and priorities for research over the years ahead

This article explains the different types of disease‑modifying therapy for SCN1A-related Dravet Syndrome, where they currently stand in development, and what this landscape means for families living with the condition today.

Dravet Syndrome UK joins new research collaboration to help find early disease clues to help patients with severe epilepsies.

A new experimental treatment for children living with Dravet Syndrome is safe and can reduce seizures considerably according to the findings of a University College London and Great Ormond Street Hospital-led international clinical trial led by Professor Helen Cross.

A look back on the research advancements made in Dravet Syndrome in 2025, including Dravet Syndrome UK's contributions.

Dravet Syndrome UK attended the American Epilepsy Society meeting in Atlanta in December 2025. Here's what we learned.

Dravet Syndrome UK is asking families to share the unanswered questions that matter most to them, so that we can fund research into areas that will make a difference.

A new BBC Future article, featuring DSUK Trustee, Stephanie, explores how climate change and increasingly severe heatwaves are making life even more challenging for people with Dravet Syndrome

New research has shed light on the enormous psychological impact on families caring for a child or adult living with Dravet Syndrome