Families invited to shape Dravet Syndrome UK’s research priorities
Dravet Syndrome UK is asking families to share the unanswered questions that matter most to them, so that we can fund research into areas that will make a difference.
Our News
BBC Future article highlights how heatwaves impact people living with Dravet Syndrome
A new BBC Future article, featuring DSUK Trustee, Stephanie, explores how climate change and increasingly severe heatwaves are making life even more challenging for people with Dravet Syndrome
New research reveals psychological distress experienced by families
New research has shed light on the enormous psychological impact on families caring for a child or adult living with Dravet Syndrome
New study reveals severe lack of support for Dravet Syndrome carers
A UK wide study exploring the impact on caregivers of those living with Dravet Syndrome has revealed that 90% were unable to continue working due to the sense of ‘constant struggle’.
Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome
We're delighted to announce that we have been selected by the Chan Zuckerberg Initiative (CZI) to receive $800,000 (approximately £600,000) over five years to accelerate our research programme.
Dravet Syndrome UK and Epilepsy Research Institute partner to invest in two future leaders in Dravet Syndrome and epilepsy research
We are incredibly proud to announce two unique research projects in collaboration with the Epilepsy Research Institute.
Dravet Syndrome UK’s Family Survey makes an impact at the American Epilepsy Society (AES) meeting
Results from the DSUK Family Survey describe the profound impact that living with Dravet Syndrome has on families.
New study aims to transform understanding of Dravet Syndrome and SCN1A-related epilepsies
The SCN1A Horizons Natural History study recruits first patients
The Epilepsy Research Institute joins forces with Dravet Syndrome UK to develop a future leader in Dravet Syndrome research
We're delighted to announce a funding collaboration with the new Epilepsy Research Institute on their inaugural grant round.