New research reveals psychological distress experienced by families
New research has shed light on the enormous psychological impact on families caring for a child or adult living with Dravet Syndrome
Our News
Dravet Syndrome Awareness Month 2025: shining a light on little moments that matter
Today marks the start of Dravet Syndrome Awareness Month 2025, an annual campaign dedicated to raising the profile of Dravet Syndrome.
Dravet Syndrome UK announces new Chief Scientific Officer
Dravet Syndrome UK is delighted to announce that Ceri Hughes, is joining the charity as its first ever Chief Scientific Officer (CSO).
KSI thanks young fundraiser Mimi Ward on The One Show
The famous YouTuber KSI made a special appearance on the BBC's The One Show to thank ten year-old Mimi Ward, the youngest girl ever to complete the London to Paris bike ride and raise almost £20,000 for Dravet Syndrome UK.
Dravet Syndrome UK signs open letter to the Government calling for urgent investment into neurological research
Dravet Syndrome UK is proud to be joined with the Neurological Alliance to raise awareness and call on the UK Government to #InvestInNeuroResearch.
New study reveals severe lack of support for Dravet Syndrome carers
A UK wide study exploring the impact on caregivers of those living with Dravet Syndrome has revealed that 90% were unable to continue working due to the sense of ‘constant struggle’.
Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome
We're delighted to announce that we have been selected by the Chan Zuckerberg Initiative (CZI) to receive $800,000 (approximately £600,000) over five years to accelerate our research programme.
Dravet Syndrome UK welcomes Stephanie Smith to Board of Trustees
We’re delighted to announce the appointment of Stephanie Smith to the Board of Trustees for Dravet Syndrome UK (DSUK),