Little Moments Matter film launched for Dravet Syndrome Awareness Day
A special film called ‘Little Moments Matter’ to mark Dravet Syndrome Awareness day 2024
Our News
Dravet Syndrome UK and Epilepsy Research Institute partner to invest in two future leaders in Dravet Syndrome and epilepsy research
We are incredibly proud to announce two unique research projects in collaboration with the Epilepsy Research Institute.
Study finds half of people living with Dravet Syndrome experience feeding problems
The study highlights that feeding difficulties are very common in Dravet Syndrome, affecting 52% of those with the condition and up to one in five may need a gastrostomy (or feeding tube) at some point.
Dravet Syndrome UK appoints first Head of Fundraising
Tania Lewis has been appointed as Dravet Syndrome UK’s first Head of Fundraising.
Dravet Syndrome UK bolsters team with new Head of Marketing and Communications appointment
Katherine Raven has been appointed as Dravet Syndrome UK’s Head of Marketing and Communications following the promotion of Claire Eldred to Director of the charity last year.
Dravet Syndrome UK’s Family Survey makes an impact at the American Epilepsy Society (AES) meeting
Results from the DSUK Family Survey describe the profound impact that living with Dravet Syndrome has on families.
New study aims to transform understanding of Dravet Syndrome and SCN1A-related epilepsies
The SCN1A Horizons Natural History study recruits first patients
The Epilepsy Research Institute joins forces with Dravet Syndrome UK to develop a future leader in Dravet Syndrome research
We're delighted to announce a funding collaboration with the new Epilepsy Research Institute on their inaugural grant round.
Axis Spine Technologies CFO Alex Williams joins Dravet Syndrome UK as Trustee and Treasurer
We’re delighted to announce the appointment of Alex Williams as Trustee and Treasurer for Dravet Syndrome UK