Dravet Syndrome UK’s Family Survey makes an impact at the American Epilepsy Society (AES) meeting
Results from the DSUK Family Survey describe the profound impact that living with Dravet Syndrome has on families.
Our News
New study aims to transform understanding of Dravet Syndrome and SCN1A-related epilepsies
The SCN1A Horizons Natural History study recruits first patients
The Epilepsy Research Institute joins forces with Dravet Syndrome UK to develop a future leader in Dravet Syndrome research
We're delighted to announce a funding collaboration with the new Epilepsy Research Institute on their inaugural grant round.
Axis Spine Technologies CFO Alex Williams joins Dravet Syndrome UK as Trustee and Treasurer
We’re delighted to announce the appointment of Alex Williams as Trustee and Treasurer for Dravet Syndrome UK
A special thank you for a phenomenal #EveryDayinMay4Dravet 2023!
A huge congratulations and thank you to Tamara and everyone who took part, raised funds and awareness, and donated to year 3 of #EveryDayinMay4Dravet!
Watch our new video for Dravet Syndrome Awareness Day 2023
Please share our film and help us build more awareness of the impact of Dravet Syndrome.
Dravet Syndrome Awareness Day 2023 – What is Dravet Syndrome?
Dravet Syndrome is a devastating and life-limiting epilepsy. Find out more and help spread awareness.
Cricketing community comes together to support Dravet Syndrome UK
Surrey and Middlesex Cricket Clubs support Matt Dunn and family in a fitting tribute to his daughter, Florence.
Claire Eldred appointed Director at Dravet Syndrome UK
Dravet Syndrome UK (DSUK) has appointed Claire Eldred as its Director..