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Emily

Emily had her first seizure at 4 months old. Her parents Catherine and Gareth share more about 'coming to terms' with the diagnosis of Dravet Syndrome.

Emily had her first seizure at 4 months old. In this short film, her parents Catherine and Gareth, share more about ‘coming to terms’ with the diagnosis of Dravet Syndrome.

We had about 28 emergency admissions in nine months; we were intubated, ventilated, PICU'd, CATS, ambulances, it was just this whirlwind of a journey.

Dravet Journeys

Every Dravet Syndrome journey is unique. Read more stories here.