Coffee and Connection

Online coffee meetups for parents and carers of adults living with Dravet Syndrome

Coffee and Connection is our new quarterly online meetup for parents and carers of adults who are living with Dravet Syndrome. A chance to connect, share, listen and support others who truly understand.

The first event will take place on:

Wednesday 5th August 2026
7.30pm
Online (to register, please email [email protected] to confirm your attendance and for the link to join)

Please note that the meetups are only available to families who are registered with Dravet Syndrome UK.

What to expect:

A relaxed and welcoming space to connect, share experiences, listen and be heard
Support from others who truly understand
Short presentation from Access Ava and how to use their resources, provided by their Legal Support Team

Register to attend

To register, please email [email protected] to confirm your attendance and for the link to join

Support for families

Personal stories

Every Dravet Journey is unique. Read the stories of adults who are living with Dravet Syndrome here.

16+ Assistance Fund

Our 16+ assistance fund is available to fund any items of equipment or assistance that will improve the life of a young adult with Dravet Syndrome, aged 16 or older.

Apply here

Support for families

Find out more about the emotional and practical support we provide to families affected by Dravet Syndrome.

Discover more here