Helpful Resources

As part of our mission to support families living with Dravet Syndrome and to raise awareness among healthcare professionals, we provide a range of guides and leaflets. Our aim is to enable families and professionals to access the best possible care and to have the most up to date information on the Dravet Syndrome. Resources can be downloaded from this section, alternatively hard copies can be sent out on request.

Resources can be downloaded from this section, alternatively hard copies can be sent out on request.

Links to other websites which you might find useful can be found here.

Access Ava

We've partnered with Access Social Care, to provide parents/carers residing in England, who care for an adult living with Dravet Syndrome aged 18+, with access to Access Ava - a free legal advice tool.