A guide for families – your mental health and accessing support
A guide for parents and carers based on the latest research about the mental health impact of caring for someone with Dravet Syndrome and how to access support.
Helpful Resources
As part of our mission to support families living with Dravet Syndrome and to raise awareness among healthcare professionals, we provide a range of guides and leaflets. Our aim is to enable families and professionals to access the best possible care and to have the most up to date information on the Dravet Syndrome. Resources can be downloaded from this section, alternatively hard copies can be sent out on request. Links to other websites which you might find useful can be found here.
Professionals guide – carers mental health and support to offer
A guide for professionals based on the latest research about the mental health toll it takes to care for someone with Dravet Syndrome and how professionals such as GPs, neurologists, epilepsy nurses or social care workers can support families.