Helpful Resources

As part of our mission to support families living with Dravet Syndrome and to raise awareness among healthcare professionals, we provide a range of guides and leaflets. Our aim is to enable families and professionals to access the best possible care and to have the most up to date information on the Dravet Syndrome. Resources can be downloaded from this section, alternatively hard copies can be sent out on request. Links to other websites which you might find useful can be found here.

Paramedic/Ambulance Resource Pack

Paramedics and ambulance crews are often the first to attend families living with Dravet Syndrome in their time of need. DSUK have developed a resource pack to not only say thank you to all the crews who attend but to also give them as much information as possible.