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Dravet Syndrome UK Family Guide
An essential guide aimed at parents and carers to support their Dravet journey - it covers every aspect of living with Dravet Syndrome and its impact on family life.
Helpful Resources
As part of our mission to support families living with Dravet Syndrome and to raise awareness among healthcare professionals, we provide a range of guides and leaflets. Our aim is to enable families and professionals to access the best possible care and to have the most up to date information on the Dravet Syndrome. Resources can be downloaded from this section, alternatively hard copies can be sent out on request. Links to other websites which you might find useful can be found here.
Seizures: types, triggers & what to expect
Seizures are a defining characteristic of Dravet Syndrome. Find out more about the types, triggers and what to expect, here.
Could it be Dravet? A Diagnosis Guide for Health Professionals
Dravet Syndrome is under-diagnosed. Being aware of its typical features and intervening early to request testing is critical to help reduce the burden of disease and ensure an appropriate treatment plan is in place.