Dravet Syndrome UK appoints first Head of Fundraising
Tania Lewis has been appointed as Dravet Syndrome UK’s first Head of Fundraising.
Our News
Dravet Syndrome UK bolsters team with new Head of Marketing and Communications appointment
Katherine Raven has been appointed as Dravet Syndrome UK’s Head of Marketing and Communications following the promotion of Claire Eldred to Director of the charity last year.
Dravet Syndrome UK’s Family Survey makes an impact at the American Epilepsy Society (AES) meeting
Results from the DSUK Family Survey describe the profound impact that living with Dravet Syndrome has on families.
New study aims to transform understanding of Dravet Syndrome and SCN1A-related epilepsies
The SCN1A Horizons Natural History study recruits first patients
The Epilepsy Research Institute joins forces with Dravet Syndrome UK to develop a future leader in Dravet Syndrome research
We're delighted to announce a funding collaboration with the new Epilepsy Research Institute on their inaugural grant round.
Axis Spine Technologies CFO Alex Williams joins Dravet Syndrome UK as Trustee and Treasurer
We’re delighted to announce the appointment of Alex Williams as Trustee and Treasurer for Dravet Syndrome UK
A special thank you for a phenomenal #EveryDayinMay4Dravet 2023!
A huge congratulations and thank you to Tamara and everyone who took part, raised funds and awareness, and donated to year 3 of #EveryDayinMay4Dravet!
Watch our new video for Dravet Syndrome Awareness Day 2023
Please share our film and help us build more awareness of the impact of Dravet Syndrome.
Dravet Syndrome Awareness Day 2023 – What is Dravet Syndrome?
Dravet Syndrome is a devastating and life-limiting epilepsy. Find out more and help spread awareness.