Helpful Resources

As part of our mission to support families living with Dravet Syndrome and to raise awareness among healthcare professionals, we provide a range of guides and leaflets. Our aim is to enable families and professionals to access the best possible care and to have the most up to date information on the Dravet Syndrome. Resources can be downloaded from this section, alternatively hard copies can be sent out on request. Links to other websites which you might find useful can be found here.

Guides

Dravet Syndrome UK Family Guide

An essential guide aimed at parents and carers to support their Dravet journey - it covers every aspect of living with Dravet Syndrome and its impact on family life.

Guides

GP Letter Template

This letter can be given to your GP Practice to signpost them to helpful resources around Dravet Syndrome, including materials produced by DSUK that can be made available in their waiting room for families looking for a diagnosis or wanting ongoing support as they navigate life with this condition.

Guides

Transition Guide

This updated version of our Transition Guide aims to support and inform families living with a young person with Dravet Syndrome, providing practical advice on navigating the challenges of transition to adulthood and managing the impact on family life.