Our News

We’re celebrating the incredible professionals who go above and beyond for families caring for a loved one with Dravet Syndrome - meet the finalists of our first-ever Little Moments Matter Awards.

A new BBC Future article, featuring DSUK Trustee, Stephanie, explores how climate change and increasingly severe heatwaves are making life even more challenging for people with Dravet Syndrome

We congratulate the Lionesses on their remarkable UEFA Women’s EURO 2025 victory and proudly celebrate Greta, a courageous 12-year-old who lives with Dravet Syndrome, who had the special honour of handing out medals at the final.

Dravet Syndrome UK has launched the Little Moments Matter Awards, a new initiative designed to recognise outstanding health, social care and education professionals

New research has shed light on the enormous psychological impact on families caring for a child or adult living with Dravet Syndrome

Today marks the start of Dravet Syndrome Awareness Month 2025, an annual campaign dedicated to raising the profile of Dravet Syndrome.

Dravet Syndrome UK is delighted to announce that Ceri Hughes, is joining the charity as its first ever Chief Scientific Officer (CSO).

The famous YouTuber KSI made a special appearance on the BBC's The One Show to thank ten year-old Mimi Ward, the youngest girl ever to complete the London to Paris bike ride and raise almost £20,000 for Dravet Syndrome UK.

Dravet Syndrome UK is proud to be joined with the Neurological Alliance to raise awareness and call on the UK Government to #InvestInNeuroResearch.