A new experimental treatment for children living with Dravet Syndrome is safe and can reduce seizures considerably according to the findings of a University College London and Great Ormond Street Hospital-led international clinical trial led by Professor Helen Cross.
Join us on Saturday 28th February to spread awareness this Rare Disease Day
Dravet Syndrome UK is delighted to announce the appointment of leading paediatric neurologist Dr Elaine Hughes to their Board of Trustees.
Every Day in May For Dravet, now it's 6th year, is open for registration! The challenge is to walk, run, swim or cycle 5km or 2km each and every day in the month of May and raise vital funds for Dravet Syndrome UK!
A look back on the research advancements made in Dravet Syndrome in 2025, including Dravet Syndrome UK's contributions.
Dravet Syndrome UK attended the American Epilepsy Society meeting in Atlanta in December 2025. Here's what we learned.
Dravet Syndrome UK is asking families to share the unanswered questions that matter most to them, so that we can fund research into areas that will make a difference.
The winners of Dravet Syndrome UK's first-ever Little Moments Matter Awards revealed at the Dravet Syndrome UK conference in London
Today, Dravet Syndrome UK has launched a new ‘Love is’ campaign, which includes a powerful film telling the story of five-year old Etta - a brave young girl whose life has been shaped by Dravet Syndrome. The film offers an intimate view into the daily challenges faced by Etta and her parents Lucie and Jo and the vital support Dravet Syndrome UK provides.
