Our News

Dravet Syndrome UK is asking families to share the unanswered questions that matter most to them, so that we can fund research into areas that will make a difference.

The winners of Dravet Syndrome UK's first-ever Little Moments Matter Awards revealed at the Dravet Syndrome UK conference in London

Today, Dravet Syndrome UK has launched a new ‘Love is’ campaign, which includes a powerful film telling the story of five-year old Etta - a brave young girl whose life has been shaped by Dravet Syndrome. The film offers an intimate view into the daily challenges faced by Etta and her parents Lucie and Jo and the vital support Dravet Syndrome UK provides.

Dravet Syndrome UK attended the International Epilepsy Congress earlier this month in Lisbon. Here's the round up from our Chief Scientific Officer, Ceri Hughes, on the latest news and developments relevant to Dravet Syndrome

We’re celebrating the incredible professionals who go above and beyond for families caring for a loved one with Dravet Syndrome - meet the finalists of our first-ever Little Moments Matter Awards.

A new BBC Future article, featuring DSUK Trustee, Stephanie, explores how climate change and increasingly severe heatwaves are making life even more challenging for people with Dravet Syndrome

We congratulate the Lionesses on their remarkable UEFA Women’s EURO 2025 victory and proudly celebrate Greta, a courageous 12-year-old who lives with Dravet Syndrome, who had the special honour of handing out medals at the final.

Dravet Syndrome UK has launched the Little Moments Matter Awards, a new initiative designed to recognise outstanding health, social care and education professionals

Today marks the start of Dravet Syndrome Awareness Month 2025, an annual campaign dedicated to raising the profile of Dravet Syndrome.