A review of Dravet Syndrome Awareness Month 2026: Love is
A look back on Dravet Syndrome Awareness Month, June 2026.
Our News
Findings from our recent Family Survey
Understanding the reality of life with Dravet Syndrome is essential to ensuring our work reflects what matters most to the families we support. Here, we share the findings from our recent Family Survey.
Help us to shape research priorities in Dravet Syndrome
Understanding the reality of life with Dravet Syndrome is essential to ensuring our work reflects what matters most to the families we support. Here, we share the findings from our recent Family Survey.
Love is Dravet Syndrome Awareness Month 2026
Get involved this June for Dravet Syndrome Awareness Month and tell us, in your own words, what love means to you and your family while living with Dravet Syndrome.
Dravet Syndrome UK launches new Lived Experience Board
Dravet Syndrome UK has launched the Lived Experience Board to centre the expertise of families in decision-making.
Rare Disease Day 2026
Join us on Saturday 28th February to spread awareness this Rare Disease Day
Dravet Syndrome Research: 2025 Year in Review
A look back on the research advancements made in Dravet Syndrome in 2025, including Dravet Syndrome UK's contributions.
Dravet Syndrome UK attends the American Epilepsy Society Meeting
Dravet Syndrome UK attended the American Epilepsy Society meeting in Atlanta in December 2025. Here's what we learned.
Families invited to shape Dravet Syndrome UK’s research priorities
Dravet Syndrome UK is asking families to share the unanswered questions that matter most to them, so that we can fund research into areas that will make a difference.