A new BBC Future article, featuring DSUK Trustee, Stephanie, explores how climate change and increasingly severe heatwaves are making life even more challenging for people with Dravet Syndrome
We congratulate the Lionesses on their remarkable UEFA Women’s EURO 2025 victory and proudly celebrate Greta, a courageous 12-year-old who lives with Dravet Syndrome, who had the special honour of handing out medals at the final.
Dravet Syndrome UK has launched the Little Moments Matter Awards, a new initiative designed to recognise outstanding health, social care and education professionals
Today marks the start of Dravet Syndrome Awareness Month 2025, an annual campaign dedicated to raising the profile of Dravet Syndrome.
The famous YouTuber KSI made a special appearance on the BBC's The One Show to thank ten year-old Mimi Ward, the youngest girl ever to complete the London to Paris bike ride and raise almost £20,000 for Dravet Syndrome UK.
A special film called ‘Little Moments Matter’ to mark Dravet Syndrome Awareness day 2024
