Finalists revealed for Little Moments Matter Awards
We’re celebrating the incredible professionals who go above and beyond for families caring for a loved one with Dravet Syndrome - meet the finalists of our first-ever Little Moments Matter Awards.
Our News
BBC Future article highlights how heatwaves impact people living with Dravet Syndrome
A new BBC Future article, featuring DSUK Trustee, Stephanie, explores how climate change and increasingly severe heatwaves are making life even more challenging for people with Dravet Syndrome
Young girl living with Dravet Syndrome gives out medals at UEFA Women’s EURO final
We congratulate the Lionesses on their remarkable UEFA Women’s EURO 2025 victory and proudly celebrate Greta, a courageous 12-year-old who lives with Dravet Syndrome, who had the special honour of handing out medals at the final.
New awards launched to celebrate unsung heroes
Dravet Syndrome UK has launched the Little Moments Matter Awards, a new initiative designed to recognise outstanding health, social care and education professionals
Dravet Syndrome Awareness Month 2025: shining a light on little moments that matter
Today marks the start of Dravet Syndrome Awareness Month 2025, an annual campaign dedicated to raising the profile of Dravet Syndrome.
KSI thanks young fundraiser Mimi Ward on The One Show
The famous YouTuber KSI made a special appearance on the BBC's The One Show to thank ten year-old Mimi Ward, the youngest girl ever to complete the London to Paris bike ride and raise almost £20,000 for Dravet Syndrome UK.
Little Moments Matter film launched for Dravet Syndrome Awareness Day
A special film called ‘Little Moments Matter’ to mark Dravet Syndrome Awareness day 2024