COVID-19 Support - Useful Resources

Below is a list of helpful resources and links for information to support families living with Dravet Syndrome during the COVID-19 (coronovirus) pandemic. 

With thanks to Neil Williamson, Epilepsy Nurse Specialist and DSUK Medical Advisory Board member, for compiling and sharing this information.

Resources to support family wellness during the pandemic:

Resources to help young people manage anxiety:

Resources for supporting children and adults with autism or challenging behaviours:

Disability grants: 

'Family Wellness' webinar with Neil Williamson, Epilepsy Nurse Specialist

On Wednesday 15th April, our Medical Advisory Board member, Neil Williamson, presented a webinar on family wellness during the COVID-19 pandemic, focused specifically on the needs of families with Dravet Syndrome. The webinar will be available to watch via video playback from 22nd April. In the meantime, you can download Neil's slides below.

Download the slide presentation