Emily had her first seizure at 4 months old. In this short film, her parents Catherine and Gareth, share more about 'coming to terms' with the diagnosis of Dravet Syndrome.

Emily's Family - Coming to terms with Dravet Syndrome

We had about 28 emergency admissions in nine months; we were intubated, ventilated, PICU'd, CATS, ambulances, it was just this whirlwind of a journey.