At the 2019 DSUK Conference, we interviewed members of our Professional Advisory Board and other expert speakers about the latest developments within Dravet Syndrome. Here are the results.
Click on the images to watch the videos out more.
Professor Helen Cross on new & emerging treatments for Dravet Syndrome
Professor Cross describes the latest approaches and emerging treatments for Dravet Syndrome, including the recently approved Epidyolex (cannabidiol).
Dr Andreas Brunklaus on the 10 Year Quality of Life Study
Dr Brunklaus discusses findings from a 10 year follow up study in children with Dravet Syndrome in the UK.
Professor Sameer Zuberi on gene therapy and genetics.
Professor Sameer Zuberi discusses the role of genetics in Dravet Syndrome and the latest developments in gene therapy.
Professor Rima Nabbout on emergency protocols and rescue medications
Professor Rima Nabbout describes the importance of having an emergency protocol in place for Dravet individuals and what parents/carers need to know about rescue medications.
Professor Paul Gringras on sleeping difficulties in Dravet Syndrome
Professor Paul Gringras provides an overview of the latest thinking and approaches to managing sleep difficulties in Dravet Syndrome.