DSUK Supporter, Tamara, wins ITV Meridian Pride Of Britain Award
We are delighted to announce that DSUK Supporter Tamara Ward, has won the ITV Meridian Pride of Britain Award.
Tamara, inspired by her four-year old nephew Dominic, who is living with Dravet Syndrome, challenged friends and family to #Run5KeverydayinMay4Dravet earlier this year. Her incredible challenge saw 40 people lace up their trainers each day and raised a phenomenal £45,000 to support Dravet Syndrome UK.
You can view the ITV Meridian announcement & news film here.
In late 2017, my sister’s family was hit with the devastating news that their gorgeous little boy Dominic (my nephew and amazing godson) had the rare illness that is Dravet syndrome. I have seen first-hand what this illness can do to a family and I wish I could take it all away with a click of a finger. However, the reality is that no one can with no cure currently available. Dravet syndrome doesn’t stop Dominic being the most wonderful, handsome, funny, bubbly boy that he is, but it has taken its toll on him and the family. This terrible, life limiting condition is something no family should have to go through and we want to do everything possible to raise money and awareness of Dravet Syndrome UK, the charity dedicated to offering hope and support to families living with this catastrophic illness. It’s such a small charity and we want to do our bit to help everyone like our little Dominic lead a long and happy life.
We'd like to extend a huge CONGRATULATIONS to Tamara and all who took part and donated to the challenge. Dravet Syndrome is a devastating and life-limiting, complex form of epilepsy that causes catastrophic seizures and a spectrum of related conditions. It not only affects the person diagnosed, but everyone around them. Dravet Syndrome is the only UK charity dedicated to supporting families affected by this experiencing this rare neurological condition that occurs in around 1 in 15,000 people. Tamara's epic fundraising has already made huge difference this year, enabling us to continue our mission to improve the lives of those affected by Dravet Syndrome.
Tamara, husband Michael and their friends and family kept everyone motivated throughout, including filming themselves while running - here's a video from half way through the month, where you can see the dedication to the challenge from everyone involved, through sunshine, rain and hail!
We'd like to thank everyone who took part in the challenge - you are all absolute heroes to us and we cannot say thank you enough to Tamara, Mike, Tim, Care, Shelly, Hen, Angelo, Elliot, Toby, Aziz, Hannah, Will, James, Phillippa, Tom, Ant, John, Johnny, Sean, Emily, Tracy, Guy, Cathy, Lucy, Regnar, Lewis, Tony, Tom, Ro, Adam, Scott, Will, Sue, Kate, Gemma, Charlie, Richard, Joe, Rosie, Lynsey, Sean and Ben.
Congratulations Tamara - ITV Meridian's Pride of Britain WINNER!
Donate to Tamara's Challenge
Tamara's fundraising page is still accepting donations for this incredible challenge. If you'd like to congratulate all those who took part and help others like Dominic, who are living with Dravet Syndrome, all donations are gratefully received
The Impact of Your Donations
Every one of our supporters’ fundraising efforts truly does make a difference, enabling us to carry out our mission to improve the lives of all those affected by Dravet Syndrome in the UK.
Find out more about Dravet Syndrome
Often described as a complex form of epilepsy, Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK.