Highlights from the DSUK Conference 2021

Posted 16th December 2021 in News

Our November 2021 conference empowered 180 parents and carers and educated 100 health and social care professionals from all around the world.

Held once every two years, our conference is the only scientific meeting in the UK that is dedicated to furthering knowledge about Dravet Syndrome. The conference delivers a packed agenda of leading voices to enable discussion of the latest updates, news and medical research.

You can find out more about the content of the DSUK Conference by watching this short film.


Professional Day

By live-streaming to Professionals and enabling an on-demand viewing option, we broadened the range of professionals with an improved understanding of Dravet Syndrome, enabling earlier diagnosis and aiming to provide accessible pathways to the best possible treatment and care for all ages.


Thankyou for such a thought provoking and informative conference. It was very relevant to practice and beneficial to improving care

Nurse (attendee of the 2021 Professional Conference)

Parent/Carer Day 

Held online and in-person in Birmingham, our parent/carer day offered education and support to each and every family affected by Dravet Syndrome, joining them with experts in the field and providing updates on activities and research that count most to them. For parents and carers who were comfortable in joining us face-to-face, the conference provided a fantastic opportunity for the Dravet Syndrome UK community to join together once more after the isolating restrictions of COVID-19. You can hear their feedback on the day in our short film below.


This year our speaker panel included members of our Medical Advisory board, Professor Helen Cross, Professor Sameer Zuberi, Dr Andreas Brunklaus, Dr Elaine Hughes, Professor Sanjay Sisodiya and guest Dr Rajvinder Karda. We also welcomed speakers to facilitate breakout sessions on our Parent/Carer Day, including Medical Advisory Board members Professor Mike Kerr and Amanda Tomalin, and guest speakers Professor Paul Gringras, Priya Bahri & Asma Bennani from the Disability Law Service, Anna Selby-Wells from Home from Home Care and Annemarie Sims from Evelina London.

We were thrilled to receive great engagement on both our Professional and Parent/Carer days and we’d like to say a huge thankyou to all of our speakers, delegates and exhibitors who attended the conference, in-person in Birmingham or online via live-stream. Thank you to all of our supporters, whose funding helps to make these events possible.