Dravet Syndrome UK Family Guide


Estimated delivery: 3 June 2022


Dravet Syndrome UK’s ‘Family Guide to Dravet Syndrome’ is an essential 68 page guide is aimed at parents and carers of Dravet patients to help guide them through the Dravet journey. The book was a culmination of a year’s hard work, with guidance and advice from two of the charity’s Professional Advisors; Professor Sanjay Sisodiya and Honorary Clinical Associate Professor Sameer Zuberi. The book contains medical information on seizures, as well as the co-morbid conditions that many Dravet patients face. It also contains information on schooling, respite and many other issues faced by families who are caring for someone diagnosed with the condition. In September 2015 the Guide was updated to include a much-needed and often requested section on Transition, that difficult period between childhood and adulthood. Case studies are featured throughout the book, which readers will no doubt be able to identify with. Huge thanks goes to all the families who submitted case studies to be used. The family guide can be ordered FOC with just postage to pay.