Helen Evans takes up Director role at Dravet Syndrome UK
Dravet Syndrome UK (DSUK) has appointed Helen Evans as its first Director. Helen brings a wealth of experience to the role, having worked as a charity director since 2008.
Welcoming Neil Williamson as our new Trustee
We’re delighted to announce that Neil Williamson, a Children’s Epilepsy Nurse Specialist, is joining the DSUK board of Trustees.
DSUK launches ambitious five-year strategy to guide it’s mission to bring hope to families living with Dravet Syndrome
Charity commits to reaching more families, delivering patient-centred research, improving awareness and understanding amongst professionals, and championing equity in care for children and adults.
Topline results from second DSUK survey on the impact of COVID-19 provide reassurance for people affected by Dravet Syndrome
Overall, the results of the survey suggest that the SARS-CoV-2 vaccines are safe and well tolerated in people with DS, as they are in most people without DS.
Interim results from Stoke Therapeutics’ Phase 1/2a US study of STK-001 in children and adolescents (aged 2-18) with Dravet Syndrome.
We’re excited to share encouraging interim results from Stoke Therapeutics’ Phase 1/2a US study of STK-001 in children and adolescents (aged 2-18) with Dravet Syndrome
NEW Family Guide launched on International Epilepsy Day
We've launched an updated and expanded version of our Family Guide! Find out more here.
Dravet Syndrome UK bolsters team with new Head of Marketing and Communications appointment
Katherine Raven has been appointed as Dravet Syndrome UK’s Head of Marketing and Communications following the promotion of Claire Eldred to Director of the charity last year.
Transition to Adulthood Guide
A guide to support and inform families living with a young person with Dravet Syndrome; it provides practical advice on navigating the challenges of transition and managing the impact on family life.
Could it be Dravet? A Diagnosis Guide for Health Professionals
Dravet Syndrome is under-diagnosed. Being aware of its typical features and intervening early to request testing is critical to help reduce the burden of disease and ensure an appropriate treatment plan is in place.
Birthday fundraiser
Birthday fundraisers set up via Facebook or Justgiving are a lovely way to encourage people to donate to DSUK.
